Make-A-Wish Foundation partnership to help rare disease sufferers, families

It’s a wish come true  for those with rare diseases and their families as the signing of a Memorandum of Understanding with the UAE Rare Diseases Society offers a ray of hope for many. 

Image UAE National News Agency

According to the terms of the MoU – signed by Hani Al Zubaidi, Make-A-Wish Foundation CEO, and Meshaal Abd Al Wahab Al Hamadi, Chairman of the Board of Directors of the UAE Rare Diseases Society – the two parties will have a partnership and mutual cooperation to grant the wishes of children with rare diseases that threaten their lives.

Al Zubaidi affirmed the foundation’s keenness to strengthen its partnerships with various health and community bodies that achieve the noble humanitarian organisation’s strategy, pointing out that “Make a Wish Foundation has made great strides in granting the wishes of sick children with incurable diseases with the support of many government and private companies, business men and community personalities.

He explained that the foundation aspires to continue its humanitarian journey, contribute to granting more wishes for children. He stated that the signing of this memorandum comes in line with the foundation’s goals to grant the wishes of children, aged between three to 18 years, with life-threatening diseases, which motivate and support them psychologically to complete their therapeutic journey.

Al Hammadi, in turn, emphasised the Society’s endeavour to form partnerships with government agencies to support the rare disease category, which would contribute to achieving one of the association’s most important goals, which is to support patients with rare diseases through granting their wishes, through cooperation with Make-A-Wish Foundation.

According to the MoU, the UAE Rare Diseases Society will provide Make-A-Wish Foundation with a list of information for children with diseases eligible for wish granting according to the foundation’s procedures and policies.

According to the society’s website, Make-A-Wish’s mission lies not only in granting the wishes of children suffering from chronic or terminal ailments, but aims to strengthen these children’s faith, along with their families and loved ones, when they all witness the children’s wishes being granted.

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